Stage Lights

Jack’s upstairs practicing the workers’ song from Frozen, track 1, “Frozen Heart.”

His babysitter is sitting next to him on the couch egging him on in all the positive ways, singing with him, clapping, shouting out the “Ho! Watch your step! Let it go!” chants as he masters it.

Next Saturday, he gets to do this on stage for a fun Camp Willow night where they invite kids to do a song or scene of their choice. I thought he’d pick Moana…but he picked this. The gal from Camp Willow emailed asking what music we need, what type of background and even what kind of lighting. Jack said, Snowflakes and rainbow colors.

Why not? So I emailed his request to her. It’s original, you gotta give him that. We’ll see how it goes.

When we take him to shows, he always asks, Is it my turn? It’s hard to explain all the reasons why I can’t just let him wander up onstage at the 5th Avenue Theater or McCaw Hall.

When we take him to shows, he always asks, Is it my turn? It’s hard to explain all the reasons why I can’t just let him wander up onstage at the 5th Avenue Theater or McCaw Hall.

I hope at those times I’ve been gentle with my answer. I’m sure I don’t always get it right. But I know I’ve said, Well, hon, the stage is for the actors. They’ve practiced this a lot and now it’s their turn to be up there. If you want to be an actor, we can look into lessons.

I know last August during the week of Epilepsy Foundation camp, they had a dance party one night. I got a video clip of it. There was Jack, the first to get up on a makeshift stage and dance, while the others ran around the floor in a big circle (which I’m sure was the plan). A grown-up tried to get him to join the circle, but no. Stage was the place for Jack, in his white tee shirt, orange plaid shorts, long legs and sneakers, doing all sorts of moves in purple light — jumping up arms outstretched on the Whoo!, twirling his hands, spinning around, running in place really fast and then his crowning move, making muscles with both arms.

I like the part when he wipes the sweat from his brow and keeps on dancing.

Eventually five other kids join him. Because who really doesn’t want to dance on stage? It’s better up there. Jack knows this.

It’s all so beautiful to me, watching this kid grow up, seeing his creativity shine. Thing is, the seizures have done a number on us but as long as those who love him keep smoothing out the way to just let him be who he is and keep giving him calm direction along the way, then we’ve done well by him. He deserves to live his truth and thrive just like any other kid on the planet. I’m here to see that through.

It’s all so beautiful to me, watching this kid grow up, seeing his creativity shine. Thing is, the seizures have done a number on us but as long as those who love him keep smoothing out the way to just let him be who he is and keep giving him calm direction along the way, then we’ve done well by him. He deserves to live his truth and thrive just like any other kid on the planet. I’m here to see that through.

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5 thoughts on “Stage Lights

  1. The beauty of being unabashedly uninhibited (if I said that correctly?). Kudos to Jack for his wonderful self – expression. I so enjoy reading about all of his escapades. Another hit out of the ballpark Blair. Love, e.e.e.

    Liked by 1 person

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